|
 |
|
|
|
 |
|
I want to welcome you to my own website.
I really want to tell you, how my day looks like.
In the morning, just after I wake up I drink a bottle of milk, on which I wait with impatience. After filling up my belly, I have to put on my glasses, which my oculist prescribed me. I have to wear them, because I have a sight defect. After that, I say goodbye to my sister Julie, who goes to the nursery school. Then my Mum begins to exercise me by the Vojta's method. This method is terrible, because during the exercises I scream as loud as I can. Fortunately, it lasts only for fifteen minutes. After the rehabilitation of my body, there comes a time for my specialist face massage, prescribed by the speech therapist. It starts from the oral cavity and ends with my ears massage. However, during this massage I also scream, because I hate when someone puts hands into my mouth. After it, I feel a lot better, because my muscles are loose and the contractions of hands and legs stop
Later, I fall asleep, because I am very tired. I sleep for about two hours. When I wake up, I eat a delicious dinner that my Mum made for me. After an hour, my Mum takes me on the rehabilitation mattress again to exercise. I am not very pleased with this, because I do not like to exercise. It is also linked with a face massage.
When the weather is sunny, I go outside. However, I do it very seldom, because I often catch different diseases. I feel very happy, when I can go together with my mum to pick Julie from the nursery, because so many toys and laughing children are there. I would also like to play and laugh when I will be older. Julie tells me that when that will happen, she would go together with me to the kindergarten, but we will see how it is all going to be... I say so, because doctors told my parents that I will live only for a few years. This fact is very sad and unfair, because I want to live, play and be happy together with my parents and all people I met and I will meet in my life. Mum and Dad are often very sad as they see that the Canavan disease gives its signs and proceeds.
In the afternoon, I go to sleep again, because I get tired very often. When I wake up, a tasty dessert waits for me and after eating it, I play together with my sister. It is a bit difficult, because I cannot sit yet and I have to lie and turn from side to side. When the evening comes, I have to exercise on the mattress again, so my screaming begins. However, after the difficult moments there are also pleasant ones, such as bathing.  I love taking a bath! Julia washes my legs and mum- the rest of the body. At the end of the day, I drink a bottle of milk again and go to sleep.
 This day, which I described, is very pleasant, because I can be at home together with my family. On the other hand, there are days when my schedule changes, because I have to go on rehabilitation, to a doctor or a hospital. Unfortunately, this situation appears very frequently, my parents are always very nervous and I am scared of every doctor I see.
My parents still have hope that something will change, because for God nothing is impossible. I would really like to be healthy Adrian "If ye abide in me, and my words abide in you, ye shall ask what ye will, and it shall be done unto you". (St. John)
|
|
 |
|
|
 |
 |
|
|
|
|
|
|
|
|
|
|
 |
 |
|
|
|
