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About Adrian
I am the mother of 19 month's old Adrian with the Canavan Disease. Since his birth, his motor development did not progress and his head got bigger and bigger. When he was 2 months old, he had bronchitis, so we went to the Medical Centre in Opole. There Adrian went for a detailed ultrasound scan and it showed that there are changes after intraventricular hemorrhages of the second degree. The Vojta's method of rehabilitation was suggested. In the fourth month of Adrian's life a right- side hernia appeared. We wanted to operate it, but there is a risk of complications after the operation, due to the metabolic disease. On the left side, there is a hydrocele, but fortunately, it does not cause any trouble.
Medical examinations:
However, the follow-up examination did not show any recovery and the rehabilitation did not give any effects, so the neurologist gave us a referral to the Upper-Silesian Child and Mother's Health Centre in Katowice for clinical examinations.
The examinations showed that Adrian has a developing Canavan Disease. There is no cure for this disease and the prognosis is tragic.
On 16 August 2005, the Head Resonance showed large changes in the brain, confirming the disease existence.
In January 2006, the last Head MRI Scan was made. This examination confirmed the developing Canavan Disease.
In February, Adrian's sight started to be worse and the oculist prescribed glasses. Some problems with stomach appeared- the acid was getting out of the stomach.
In the ultrasound scan there were no irregularities showed. Since April Adrian is in House Hospice for Children in Opole, he is under medical care all the time.
Now, we are gathering founds on a rehabilitation turn, on which we want to go in August.
We also need to make very expensive genetic examinations, thanks to which we will know to what extent the Canavan Disease has developed.
There is no cure for this disease, only the rehabilitation is capable of keeping my son on some level of development.
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